Hey, I made a group on facebook for those who have Autism and don't agree with Autism Speaks. It's open to anyone, I have a feeling that once the numbers start to rise, and the curbies start to take notice, this could become interesting. If you're on Facebook and don't agree with Autism Speaks, come and join.
http://www.facebook.com/group.php?gid=114524521917723There are currently 530 Autism awareness/Autism Speaks groups on Facebook, there doesn't appear to be any actually run by people with Autism that don't feel that Autism Speaks does a good job representing us, that's the purpose of this group.